A yau na kawo muku wani baƙon labari amma na gaske. Labari ne na wani mutum wanda a halin yanzu yake iya rayuwa tare da gefen dama na ƙwaƙwalwa tun lokacin da aka cire hagu na hagu.
Kacie kogo yana zaune a Oklahoma. Yana son yin iyo, shaƙatawa, da ruwa. Menene batun da kuka fi so a makaranta? "Lissafi, babu shakka" Kacie ya amsa.
Ba abin mamaki bane, la'akari da hakan Kacie kawai yana da rabin kwakwalwa.
Shekarun baya, likitocin tiyata a cibiyar yara ta Johns Hopkins da ke Baltimore, Maryland, sun yi aikin tiyata suka cire gefen hagu na kwakwalwarsa a cikin aikin awa 12. Tsawon shekaru huɗu, yana fama da kamuwa da cuta wanda ya haifar masa da "jujjuya" gefen dama na fuskarsa da jikinsa. Kamewa ya afkawa Kacie sau 100 a rana, barin ta kusan gurguwa da rashin magana.
Kacie ya yi fama da wani irin nau’in cutar farfadiya (ciwan kai akai-akai) da ake kira Rasmussen encephalitis, cuta mai saurin kamuwa da kwakwalwa wanda ke shafar yara 'yan ƙasa da shekaru 10.
Masana kimiyya har yanzu ba su san takamaiman abin da ke haifar da Rasmussen encephalitis ba. "Wataƙila cuta ce ta autoimmune wacce jiki ke lalata narkar da ƙwayar kwakwalwarta"in ji Dr. John Freeman, darektan Cibiyar Johns Hopkins don Yaduwar Yara. Masu bincike sun san cewa marasa lafiyar Rasmussen suna dauke da kwayoyin cuta (abubuwan da jiki ke samarwa don lalata kwayoyin cuta ko wasu kwayoyin halittu na waje) zuwa takamaiman sunadarai a cikin kwakwalwa da ake kira masu karɓa na glutamate. Lokacin da suka shiga kwakwalwa, wadannan kwayoyi suna kai hari ga masu karba, suna haifar da kamawa.
Ga Kacie, ya fara ne da matsanancin ciwon kai lokacin tana 'yar shekara 10. "Ya kasance watan Mayu"yana tuna mahaifiyarsa, Regina. A wannan daren, Kacie ya shiga rikici. Ta zagaya daki tana karya duk abinda ta samu. " Iyayenta sun garzaya da Kacie zuwa asibiti. EEG (yana auna aikin wutar lantarki na kwakwalwa) ya tabbatar da cewa harin ya shafi bangaren hagu na kwakwalwarsa.
Ganin yadda kamuwa da Kacie yayi tsanani, sai iyayenta suka dauke ta daga wannan asibitin zuwa wancan, neman magani. Likitocin Kacie har sun cire wani karamin sashi na kwakwalwarta inda suke tsammanin kamuwa da cuta ya samo asali. Koyaya, hare-haren sun ci gaba cikin fushi.
Tsarin halittar jini
Daga ƙarshe Kogon ya juya ga Dr. Freeman, wanda ya ba da shawarar irin wannan hanya mai ma'ana har Caves suka firgita. Shawarwarin ku: cire rabin rabin hagu na kwakwalwa, hanyar da ake kira hemispherectomy. Yin aikin, wanda aka fara haɓaka a cikin 1920s, ba da daɗewa ba aka watsar da shi, da yawa marasa lafiya suka mutu yayin aikin tiyatar. Koyaya, sabbin fasahohi da sikanin kwakwalwar zamani sun farfaɗo da aikin.
Kwakwal ta kasu kashi biyu, dama da hagu. Kowane rabi yana iko da kishiyar sashin jiki, wannan shine dalilin da yasa rikicewar lantarki a cikin sassan hagu na Kacie ya shafi gefen dama na jikinta. Don dalilan likita wadanda har yanzu ba a san su ba, Cutar Rasmussen kawai tana kai hari ne zuwa yanki ɗaya na duniya, amma ba ya tsallaka zuwa ɗaya gefen kwakwalwar.
Kusan rabin dukkan sassan jiki ana yin su ne a cikin yara masu cutar Rasmussen encephalitis. Har ila yau, likitocin tiyata suna yin sa a cikin yara da ke fama da cutar dysplasia ta jiki da waɗanda ke da cutar Sturge-Weber (samuwar jijiyoyin jini mara kyau wanda ke sa gefe ɗaya na ƙwaƙwalwar ta ragu). Yawancin dozin jini ana yin su kowace shekara a Amurka.
Yara, musamman ma yara, sune mafi kyawun candidatesan takarar heman adam: har zuwa shekaru 12, kwakwalwar ɗan adam tana ci gaba da girma da haɓaka. Wannan yana nufin cewa koda lokacin da aka cire wani yanki, dayan rabin yayi saurin rashi rashinsa ta hanyar samar da sabbin jijiyoyi da dendrites.
Illswarewar da ke zaune a gefe ɗaya na kwakwalwa (misali, lissafi da yare a gefen hagu) suna canjawa zuwa ɗaya gefen ta atomatik.
Iyalan Caves sun yanke shawarar ci gaba da aikin kwakwalwa. Kacie ya kusan shekara 14.
Kacie ta fito daga aikin tiyata ta kasa magana (tuni ta samu matsalar magana kafin aikin). Ta iya cewa 'e', 'a'a', 'na gode' amma ba ta iya sadarwa da ra'ayoyi. Kacie ya yi maganin maganganu kowace rana har zuwa bazarar shekara mai zuwa.
Kacie ya koma makaranta a matsayin dalibin sakandare. Yin aikin ya bar hannunta na dama a zahiri bashi da amfani kuma tana tafiya da karamin rauni amma idan aka tambayeta yadda take ji shekaru bayan aikin, sai ta amsa: «Ina jin dadi sosai, kwarai da gaske. Ba ni da sauran kamuwa kuma na yi farin ciki da hakan. "
Na bar muku bidiyon labarinsa (da Turanci ne):