Nhasi ndinokuunzira nyaya isinganzwisisike asi chaiyo. Iyo inyaya yemunhu uyo parizvino anokwanisa kugara neake chete kurudyi hemisphere yehuropi kubva kuruboshwe hemisphere rakabviswa kuvhiya.
Kacie mapako anogara ku Oklahoma. Anoda kushambira, snorkeling, uye scuba diving. Ndeipi yaive nyaya yako yaunofarira kuchikoro? "Masvomhu, hapana mubvunzo" Kacie anopindura.
Zvinoshamisa, tichifunga izvo Kacie anongova nehafu yehuropi.
Makore apfuura, vanachiremba vanovhiya paJohns Hopkins Children's Center muBaltimore, Maryland, vakavhiya vakabvisa ruoko rweruboshwe rwehuropi hwake mukuvhiya kwemaawa gumi nemaviri. Kwemakore mana, akange atambura pfari izvo zvakamuita kuti "atsveke" kurudyi kwechiso chake nemuviri. Kufenda kwakarwisa Kacie ka100 pazuva, zvichimusiya akaoma mitezo uye asingakwanise kutaura.
Kacie akatambura nechimiro chisingawanzoitika zvepfari (kurohwa kazhinji) inonzi Rasmussen encephalitis, chisingawanzoitiki uropi hunokanganisa vana vari pasi pemakore gumi ekuberekwa.
Masayendisiti haasati aziva zvechokwadi chinokonzera Rasmussen encephalitis. "Chingangoita autoimmune chirwere umo muviri unoparadza hunyanzvi hwayo hwehuropi"inofungidzira Dr. John Freeman, director weJohns Hopkins Center for Pediatric Epilepsy. Vatsvagiri vanoziva kuti varwere veRasmussen vanotakura masoja ekudzivirira muviri (zvinhu zvinogadzirwa nemuviri kuparadza mabhakitiriya kana zvimwe zvipenyu zvekunze) kune mamwe mapuroteni muhuropi anonzi glutamate receptors. Kana dzikapinda muuropi, masoja ekudzivirira chirwere aya anorwisa zvinogamuchirwa, zvichikonzera kugwinha.
Kuna Kacie, zvakatanga nemusoro wakanyanya wemusoro aine makore gumi. "Wanga uri mwedzi waMay"anoyeuka amai vake, Regina. Husiku ihwohwo, Kacie akapinda mumatambudziko. Akafamba famba mumba achiputsa zvese zvaakawana. " Vabereki vake vakamhanyisa Kacie kuchipatara. EEG (kuyera mashandiro emagetsi ehuropi) yakatemwa kuti kurwisa kwacho kwakanangiswa kuruboshwe kuropi kwake.
Sezvo kubata kwaKacie kwakawedzera, vabereki vake vakamutora kubva kuchipatara chimwe kuenda kune chimwe, kutsvaga mushonga. Vanachiremba vaKacie vakatobvisa chikamu chidiki kwazvo chehuropi hwake kwavakatarisira kuti pfari dzinotanga. Zvisinei, kurwisa kwacho kwakapfuurira mukushatirwa kuzere.
Hemispherectomy
Mapako akazopedzisira atendeukira kuna Dr. Freeman, uyo akataura maitiro akaomarara zvekuti Mapako akavhunduka. Zano rako: bvisa hafu yese yekuruboshwe yehuropi, nzira inonzi hemispherectomy. Kuvhiya, kwakatanga kugadzirwa muma1920, kwakakurumidza kusiiwa, varwere vazhinji vakafira panguva yekuvhiyiwa. Nekudaro, matekinoroji matsva uye epamberi scans scans zvakamutsidzira maitiro.
Uropi hwakakamurwa kuita ma hemispheres maviri, kurudyi uye kuruboshwe. Hafu yega yega inodzora divi rakatarisana nemuviri, ichi ndicho chikonzero nei kukanganiswa kwemagetsi muKacie kuruboshwe hemisphere kwakabata divi rerudyi remuviri wake. Nezvikonzero zvekurapa izvo zvisati zvazivikanwa, Chirwere cheRasmussen chinorwisa imwe hemisphere, asi haiyambuki ichienda kune rumwe rutivi rweuropi.
Inenge hafu yezvose hemispherectomies inoitwa muvana vane Rasmussen encephalitis. Vanovhiya vanozviitawo muvana vane cortical dysplasia uye avo vane Sturge-Weber syndrome (isina kujairika yeropa dhizaini dhizaini iyo inokonzeresa rumwe rutivi rwehuropi kudzikira). Akawanda gumi nemaviri mahemispherectomies anoitwa gore rega rega muUnited States.
Vana, kunyanya vechidiki, ndivo vakanyanya kukwikwidza hemispherectomies: kusvika pamakore gumi nemaviri, huropi hwemunhu hunoramba huchikura nekukura. Izvi zvinoreva kuti kunyangwe panobviswa imwe hemisphere, imwe hafu inokurumidza kubhadhara kubviswa kwayo nekugadzira manyuroni matsva nema dendrites.
Unyanzvi hunogara kune rumwe rutivi rweuropi (semuenzaniso, masvomhu uye mutauro kuruboshwe) zvinongoerekana zvaenda kune rimwe divi.
Mhuri yeMapako yakasarudza kuenderera mberi nehemispherectomy. Kacie anga ave nemakore gumi nemana ekuberekwa.
Kacie akabuda mukuvhiyiwa asingakwanise kutaura (aitova nematambudziko ekutaura vasati vavhiya). Aigona kuti 'hongu', 'kwete', 'maita basa' asi asingakwanise kutaura pfungwa. Kacie aiita zvekutaura kurapa mazuva ese kusvika muchirimo chegore rinotevera.
Kacie akadzokera kuchikoro semudzidzi wepachikoro chepamusoro. Kuvhiya kwacho kwakasiya ruoko rwake rwerudyi rwusina basa uye anofamba akagwinha zvishoma asi paakabvunzwa manzwiro aanoita makore mushure mekuvhiyiwa, anopindura achiti: «Ndinonzwa zvakanaka kwazvo, zvakanaka chaizvo. "Handisisina pfari uye ndinofara nazvo."
Ndinokusiya uine vhidhiyo yenyaya yake (iri muChirungu):